So tonight I took the first bath since I delivered the babies 14 months ago. I am actually not a huge bath person – never seem to find the time, but the fact that I was unable to take a bath due to my dialysis catheter – was quite irritating and a constant reminder of the lack of normalcy of my life. The catheter finally came out a few weeks ago, once it appeared like things were stable and I was not going to need it, and I am healed up enough to finally have a soak in the tub. It was lovely.
Life has indeed settled into a new normal. I am doing well; Brutus is performing and my creatinine has bounced between 1.1 and 1.35 or so. Of course every time it bounced up into the 1.3’s I have a panic attack but it has behaved and bounced back down after that. We have dropped the prednisone down to 10 mg, which is great and I am hoping some of the side effects – such as my round face, fat neck and increased weight, will get better soon. I had a little trouble with my white blood count (WBC) – it got very low, into the neutropenic range, putting me at serious risk of infection. We tried stopping some of the medicine first, like the antiviral pill I was on prophylactically, and when that didn’t work I got a shot of Neupogen, which is typically given to cancer patients after chemotherapy. That is good stuff – my WBC rebounded within days and is now much better although something we will need to watch closely.
So what does this new normal look like? It is BUSY! On a typical day, I wake at 6 to shower and dress before the babies get up. They wake at 6:30 or 6:45 and I spend an hour with them getting dressed and playing. Vilma, their nanny who lives with us, starts work at 7:30 most days, so I bring them downstairs and she feeds them breakfast. Then I finish getting ready and if I am not hitting the road, I head in to the office. I work all day and get home by 5:30 when Vilma is off. More play time, baths, bottles and bed by 7:15 or so. Then I clean up their tsunamis, and go down to the basement to exercise – that has been pretty consistent for the past few months, which I am really happy about. Dinner at 8:30, then maybe a little work, and then I go off to bed. I have also been traveling a lot – more than I expected frankly. I have been on the road 1-3 days most weeks. All of which doesn’t leave much time to blog. I am sure Sarah is wondering if I will ever blog again! But here I am and will make more of an effort moving forward.
The kids are doing fantastic, walking and although not taking yet certainly making lots of sounds. They are interacting a lot more and it so cute then they make each other laugh! I will try to post some videos tomorrow. It was great to see Sarah in Denver this week although I am not sure she properly aappreciated our -8 degree weather!